Q: My daughter was diagnosed with RP at 8 and lost her vision. But continued on like a Boss.
At 15 shestarted acting strange and after several tests they did a genetic test and said the blindness was caused from Battens Disease and that she would die before 19. She made it to be 17. Why did the specialists at Vanderbilt not check to see why she went blind cause if i had Known this then i would have spent every moment with her and done so much more for her but when i found out i only had 9 months left and she was bed ridden by that time. I think the Doctors robbed me of special time with my baby girl and should pay. Is there anything i can do? I couldnt even do a proper funeral because was the only parent and didnt have time to prepare and save money for the costly thing and they allowed her to have a viewing of 2 hours because i couldnt pay
A: Generally they wouldn't do the tests because the treatment would likely be the same. However to give yourself closure --and as I may be wrong--contact members of the Tennessee Assn for Justice--they give free consultations. A grief counselor may help you process your natural but very heavy feelings.
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